Research Design Service South East

Public Involvement Resources

Public Involvement Resources

25/3/20 Patient and Public Involvement and Engagement during COVID-19:  

In view of the current  situation we need to adapt how we carry out PPI in research.Public involvement continues to be very important in developing funding applications and will still be expected by research funding bodies.

  • As always with PPIE, there is no one-size-fits-all so there may be a range of options.
  • Public involvement should continue to be a key element of the development of research where possible
  • Involvement should not involve direct social contact or the need to travel
  • Plan appropriately  – involve public contributors in planning
  • Use the UK Standards as a framework to ensure quality PPIE practices
  • For a useful summary and top tips for video calls with patients and the public see PPI video call guide
  • Ensure public contributors continue to be rewarded and recognised (existing payment processes may need to be adapted).
  • Keep public contributors regularly informed and updated of the progress of involvement and applications.
  • Keep public contributors updated on research progress; staying connected is good to support social contact.
  • Signpost people to appropriate, authoritative, up-to-date advice on coronavirus as needed.
  • Give necessary support to involve public contributors remotely:
    – Ensure they can access relevant software or applications;
    – Include clear instructions of how to join remote meetings, as well as support where needed
  • Make sure to advise attendees about online safety and to be aware of, and happy with, what may be visible in the background of their web camera.



There are plenty of excellent public involvement resources available, here are some of the ones we recommend:

RDS_Guide_to_PPI This new PPI resource  compares and contrasts PPI activities and qualitative  research

This useful handbook was developed by the RDS to help you plan, manage and carry out your PPI activities: Public Involvement in health and social care research

Involve have a range of excellent publications on public involvement including:

Guidance on payment and recognition of public involvement 

Involve cost calculator

Involving children and young people in research

Briefing notes for researchers

Make it clear campaign

The NIHR ‘going the extra mile’ report is a strategic review of public involvement in the NIHR. It sets out the importance of public involvement in research and their vision for strengthening public involvement in research in the future.

Generation R – young people improving health through research.

Useful resources when thinking about public involvement in research:

National standards for public involvement

Patient Involvement Handbook (2014)

Plain English Summaries

Involve Plain English Summaries

Here are some local resources that we have developed:

A development programme for public involvement

PowerPoint presentation – a practical guide to public involvement

An adapted version of the NoMAD tool for planning and evaluating public involvement and some accompanying guidance notes.





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