Public Involvement Resources

16th May 2022: Patient and Public Involvement and Engagement update

With government COVID-19 restrictions lifted, we still need to consider carefully how we carry out PPI in research whilst we negotiate a new research environment.

As always with PPIE, there is no one-size-fits-all so there may be a range of options
Public involvement should continue to be a key element of the development of research where possible
Involvement should not involve direct social contact or the need to travel
Plan appropriately – involve public contributors in planning
Use the UK Standards as a framework to ensure quality PPIE practices
For a useful summary and top tips for video calls with patients and the public see PPI video call guide
Ensure public contributors continue to be rewarded and recognised (existing payment processes may need to be adapted)
Keep public contributors regularly informed and updated of the progress of involvement and applications
Keep public contributors updated on research progress; staying connected is good to support social contact
Signpost people to appropriate, authoritative, up-to-date advice on coronavirus as needed
Give necessary support to involve public contributors remotely:
– Ensure they can access relevant software or applications
– Include clear instructions of how to join remote meetings, as well as support where needed
Make sure to advise attendees about online safety and to be aware of, and happy with, what may be visible in the background of their web camera

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RDS and NIHR PPI resources:

RDS_Guide_to_PPI This new PPI resource compares and contrasts PPI activities and qualitative research

This useful handbook was developed by the RDS to help you plan, manage and carry out your PPI activities: Public Involvement in health and social care research

Make it clear campaign The National Institute for Health and Care Research (NIHR) is committed to making sure that each research study it funds has a clear and concise plain English summary. It is important that this information explains the research as a whole and is easy to read and understand.

The NIHR ‘going the extra mile’ report is a strategic review of public involvement in the NIHR. It sets out the importance of public involvement in research and their vision for strengthening public involvement in research in the future.

National standards for public involvement

RDS SE locally developed resources

A practical guide to public involvement

An adapted version of the NoMAD tool for planning and evaluating public involvement and some accompanying guidance notes.

Involve Resources

Guidance on payment and recognition of public involvement

Involve cost calculator

Involving children and young people in research

Briefing notes for researchers

Involve Plain English Summaries

Other resources

Generation R – young people improving health through research.